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Below is a copy of a letter mailed to the President today:
Dear President Obama,
I am writing to ask you to intervene onbehalf of Ariana-Leilani, an African-American, German-American child who residesin Washington, D.C., and is being denied medical treatment for Severe ChronicNeutropenia. She has been diagnosed with this potentially fatal disease but todate has received no treatment for it.
An excerpt takenfrom Case 1:11-cv-01124-JSG Document 24 Filed 04/13/12 IN THE UNITED STATES DISTRICT COURT FOR THE DISTRICT OF COLUMBIA CivilAction No. 1:11-cv-001124-JSG to the Honorable Judge James S. Gwin, states that:
3. To date, ALMA has not received independent medical andpsychological examinations, as requested by the German Government through theGerman Embassy for its’ child citizen, ALMA, to determine the underlying causeof ALMA’s life threatening Severe Chronic Neutropenia.
4. To date, ALMA has not received the recommended treatment ofGCSF medicine that boosts the immunity of a person suffering from SevereChronic Neutropenia, leaving her unnecessarily vulnerable to clandestine commoninfection, which can kill its victims within hours sometimes with little or notypical outward warning symptoms.
5. During the course of her four years of unnecessarily suffering with Severe Chronic Neutropenia,ALMA has endured lesions, infections, gingivitis, periodontal disease, loss ofteeth, wetting accident during the day and at night, delayed development, andPost Traumatic Stress Disorder, which all can be attributed to the diagnosedbut untreated Severe Chronic Neutropenia and/or untreated Post Traumatic StressDisorder (PTSD).
29. ALMA’s father is a Caucasian GermanCitizen living and working in the US as a neurologist for the United StatesVeterans Affairs Hospital in the District of Columbia on a marriage visa thatexpires in 2012. ALMA’s father formerly worked at Medstar Health GeorgetownUniversity Hospital. ALMA’s Mother and the ALMA’s father remain married, butestranged and living apart. There is now a divorce proceeding pending inBayreuth, Germany, where incidental issues, thereto, related to ALMA has beenraised. There are no custody orders registered or entered in the District ofColumbia, or in Germany, leaving both parents with joint rights in the Districtof Columbia. ALMA’s Father refused to cooperate when requested by the GermanEmbassy in getting the ALMA free medicine to boost her immunity (“GCSF” aka “neupogen”),and a full independent medical and psychologicalexamination.
80. Defendant DC has discriminated against ALMA’s Mother, whois African-American, in favor of Plaintiff’s Child’s father, who is Caucasian.
In 2010, The German Embassy sent arequest to have this child independently tested and to receive medication, but,to date, the father still refuses to allow it, and the Office of Children'sissues, U.S. Department of State has not responded favorably to acting on thischild’s behalf.
Followingis a copy of the letter from the German Embassy sent on August 12, 2010, in regards toAriana-Leilani:
Ariana-Leilani Margarita Alexandra KING-PFEIFFERRef. No, {please cite in response): RK 520, SE King-Pfeiffer
Washington, D.C., August 17, 20I0
Dear Mr. Regan,Please allow me to bringto your attention and seek your assistance in the case of seven year old Ariana-Leilani KING-PFEIFFER,a child with dual German and American citizenship. She is living with herfather, the German national, Dr. Michael Pfeiffer, in Washington, D,C. Hermother, Dr. Ariel King, a U.S. citizen, lives in Germany.
Earlier this year, the NOO Innocence in DangerInternational has brought serious concerns about possible medical mistreatmentand possible sexual abuse of the child by the father to the attention of theEmbassy. The concerns related to medicalmistreatment, based on the child's extensivemedical and school records, and were supported by physicians of the Severe ChronicNeutropenia International Registry and the German NGO Avalon.
The German Embassy so far has had no direct access to thechild nor to information from an independent source. As of today, the Embassyhas received documentation on the child's case consisting ofmedical test records from George Washington University Hospital (GWUH), opinions and school health records. Unfortunately,without the consent of the father, who has sole custody, the Embassyhas no way of verifying the status of the chiId or the information it has beengiven.
In any event, the allegations are of such a seriousnature that we feel that a fully independent medicalexamination of the child should be ordered by the competent U.S. authorities. Adivorce and custody case is currently pending in Bayreuth, Germany. The motherclaims that the father refuses to agree to allow her, or anyone acting on herbehalf; to have direct contact with her child, the child's sole treatingphysician at GWUH, and GWUH itself. The mother is representedby Mr. Roy L. Morris, Esq., Arlington, VA. The father is represented by Mr. SeanW. O'Connell, Arlington, VA.
GWUH health records, which were forwarded to theEmbassy, state that the child suffers from Severe Chronic Neutropenia, a medical condition which consists of severely lowimmunity levels over an extended period of time that leave the child vulnerableto potentially fatal infections.
The Embassy was also provided with opinions frominternational experts in the field of pediatric hematology whoexpressed serious concerns for the child's safety. In the opinion of theseexperts there is a lack of a thorough evaluation of the cause of the medical conditionof the child and a lack of an appropriate treatmentwith a rnedical drug called GCSF which boosts immunity to more normal levels.However, these medical experts have not yet had the possibility to examine thechild in person.
The mother believes that the medical condition of thechild could have been induced by the administration of a particularpsychotropic drug. According to her, the sole treating physician's reports arebiased because he is an associate of Dr. Pfeiffer at GWUH, and his reports showinconsistencies with regard to the medical tests and school reports.
The Embassy was informed that Dr. Pfeiffer has beenworking at GWUH as a physician until 2008. Reportedly he is currently workingfor the Veteran's Administration Hospital in Washington, D.C.
The report from a guardian ad litem in a past child custodycase notes that the child purportedly lives in a one-bedroom apartment with herfather. The representative of the mother, Mr. Morris, forwarded documents whichinclude a statement of a clinical psychologist from Maryland who, based onmedical records, interviews of the mother, and other documentation, utters herprofessional opinion in writing that the child Ariana-Leilani " ...continues to be at risk in her current environment of both physical and medical neglect, and likely sexual abuse."
The German Embassy has a legal obligation under Art. 5of the German Consular Act to support German citizens in need of assistance. Awritten proposal from the Embassy dated March 30, 2010, to let the childundergo a full independent medical examination on a voluntary basis -- andwhich costs the mother's health insurance in Germany would cover – has beendeclined by the father's lawyer, Mr. O'Connell.
So far, the father has refused to communicate with theEmbassy directly.
The possibilities of the Embassy are limited tovoluntary cooperation and have been exhausted.The German Embassy would therefore be grateful if the Departmentof State could take up this matter in order to obtain an independent medicalexamination of Ariana-Leilani King-Pfeiffer. Once her true health status isclarified, optimal medical care for her seemingly serious medical condition canbe ensured.
If you have questions in this matter please do nothesitate to contact me. I am including a listof points of contact, and a copy of a letter from theUniversity of Washington, Department of Medicine, in this matter for your information.
With many thanks for your support.Sincerely YoursKlaus Botzet
Mr. Regan offered no support to eitherKlaus Botzet or to Ariana-LeIlani.
Mr. President, my family has servedthis country for generations. I am the daughter and granddaughter of soldiers, andnow the mother of one veteran and one son actively serving in Germany. MyFather served this country with valor, was awarded a Purple Heart and a SilverStar, and was buried—In the ground—In Arlington National Cemetery with fullmilitary honors in August of 2009. I am proud to possess a document signed byyou honoring the memory of my father, expressing gratitude for his service. I appealto you as my President, as Ariana-Leilani’s President, and as a father to use your influence to helpthis child.
I thank you for your support in thismatter.
Sincerely Yours
Jocelyn Andersen
Additional message to readers: Please sign Ariana-Leilani's petition and consider writing a short follow-up letter to the President
The petition site is: http://www.ariana-leilani.com
President Barack Obama
The White House
1600 Pennsylvania Avenue NW
Washington, DC 20500
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